Date: Sunday 4 August 2024

Venue: UIC Disability Health Social Policy building 1640 W Roosevelt.

Workshops were conducted in half-day formats and included the presentation of theory (the evidence base) and opportunities for activities and/or discussion among participants. Importantly, the content featured innovative ideas that have practical application, with participants gaining both knowledge and skills.

Workshop 1

The development of a new personalised intervention for aggressive challenging behaviour in adults with intellectual disabilities

09:00am - 12:30pm

The workshop will cover the development of the Personalised Treatment Packages For Adults With Learning Disabilities Who Display Aggression In Community Settings (PETAL). It will describe the findings from the feasibility study as well as new insights into aggressive challenging behaviour in adults with intellectual disabilities

Organisers:
Prof Angela Hassiotis
UCL Division of Psychiatry

 

Workshop 2

Person-centred support for promoting engagement, social interaction, and community involvement: an app for tailoring staff support to individual needs

9.30am - 12:30pm

A unique opportunity to learn and interact with a digital application for harmonising person-centred staff support to promote engagement, social interaction, and community involvement among persons with intellectual disabilities living in small community homes.

Organiser:
Sandy Toogood
Bangor University

Workshop 3

How to Make Your Research More Inclusive: a Workshop by Inclusive Research Teams

09:00 am - 12:30 pm

This interactive workshop will be facilitated by inclusive research teams from Ireland, the Netherlands and the US. The workshop will first explore the history and principles of inclusive research. The inclusive research teams will then share their experiences and the strategies they use in designing, conducting and disseminating their inclusive research projects. The facilitators will be prepared to engage both academic researchers and people with lived experience of disability by gearing workshop discussion and activities to their needs and interests. The workshop will use innovative inclusive teaching practices (e.g. small and large group discussions, brain breaks, and graphic facilitation techniques), and accessible materials (e.g. videos, plain language, and visuals) to accommodate the access needs of workshop participants and facilitators including individuals with intellectual and developmental disabilities.

Organisers:
Lieke van Heumen
Courtney Krueger
Alice Schippers
Mark Koning
Fionn Crombie Angus
Jonathan Angus
University of Illinois

Workshop 4

People with Intellectual Disability Talking About, Understanding and Planning for End of Life

09:00 am - 12:30 pm

Want to help people with intellectual disability understand and plan for dying and death but don’t know what to do or what to say?  Like to learn about the latest multimedia end-of-life resources designed for people with intellectual disability? This workshop will give you the knowledge, skills, resources and confidence to help people with intellectual disability understand and plan for end of life.

Organisers:
Roger Stancliffe
Nicola McKenzie
Brigit Mirfin-Veitch
University of Sydney

Workshop 5

Journey towards an updated Position Paper about Parents with Disabilities and their families

1:30pm - 5:00pm

The field of parents and parenting with intellectual disability has grown over the last few decades, both in breadth and depth of research and practice knowledge. Drs Aunos and McConnell will facilitate an evidence-informed discussion (roundtable/workshop format) with researchers, practitioners and advocates within the parenting SIRG of what we have learned from research and practice is the last 15 years and how we can move the field forward, keeping in mind both practice and policy implications

Organisers:
Marjorie Aunos
David McConnell
Parents and Parenting with Intellectual and Developmental Disability SIRG
University of Alberta

Workshop 6

Humanitarian Response and People with IDD in Armed Conflict Zones

1.30pm - 5:00pm

This workshop focuses on people with IDD in armed conflict zones. It reviews the available data for people and presents a possible engagement model developed from an IASSIDD webinar. The workshop is interactive – it will feature recordings from people who have lived through periods of armed conflicts and a scholar who has research experience. Participants will be invited to share their views and ideas on future research projects and what proactive strategies might improve people lives who are caught in conflict.

Organiser:
David Treanor
University Associate, University of Tasmania

Workshop 7

The Person Experiences Interview Survey (PEIS) for people with Intellectual and Developmental Disabilities and Mental Health Service Experiences

1.30pm - 5:00pm

The development of a Patient Reported Experience Measure of mental health service experiences for individuals with IDD will be described including background, development, analysis, and results. The PEIS fills a long overdue gap in inclusive mental health service delivery for people with IDD as an interview tool designed for input from the person with IDD about mental health service experiences. The PEIS was codesigned with people with lived experience

Organisers:
Joan Beasley
Luke Kalb
Jessica Kramer
Andrea Caoili
Tawara Goode
Micah Peace
Andrea Caoili
University of New Hampshire, Johns Hopkins University, University of Florida, Georgetown University